10/14/18 Update

It’s a beautiful day in Houston today – The Astros won game one of the ALCS at Boston!

Will have 2nd round of Vykeos infusion later this evening and my oral dose of Venetoclax has been increased to 200mg/day. Likely won’t be moved to “isolation ward” until early this week. So far, I have not had any terrible side effects from treatments, but I realize it is still early. Continue to play the waiting game, hoping that treatments are working in reducing blast levels to below 5% so that I can move toward the next phase of stem cell transplant. Staff here at MDA are exceptional, and I am proud and pleased to be living in an area where I have access to such great care.

I appreciate everyone’s continued support and prayers. At Lorraine’s suggestion, I started a separate journal last night listing things I am thankful for each day. I remain positive knowing I am in God’s hands.

I am not used to being this confined for such a lengthy time period. To overcome my boredom, I am walking laps around my floor three times a day and updating my 8-hour OSHA Refresher training. 15 laps is equivalent to a mile, so I can still get my steps in. Other than that I am watching the Astros playoff games and watching some exciting videos provided by MDA on falling hazards and the “ins and outs” of life on the isolation ward. Pretty exciting stuff! Trying not to drive the staff crazy!

Please continue to keep me in your thoughts and prayers. I can feel the strength your good wishes bring and appreciate all of your support.

Peacefully yours,

John L.