Still an interesting ride! I start my second monthly round of maintenance chemotherapy tomorrow – 5 consecutive daily subcutaneous injections of Guadecitabine. The first round earlier this month wasn’t terrible, but it did seem to adversely impact my energy and fatigue levels. I am hoping side effects will diminish over time. I had my central venous catheter (CVC) removed last week – a big step toward achieving some level of normalcy. I am trying to step up my exercise regiment to thwart off tiredness – started walking twice a day this past week, and rode my bike outside for the first time today since I was diagnosed with AML. Rode 5.6 miles.
It has been 81 days since my stem cell transplant. On May 13, 2019 I will have a consulting “survivorship meeting” with MDA personnel to discuss what my “new normal” will be. I am hopeful that every new day will bring improvements in my stamina and energy level. I am also hopeful that I will be allowed to start traveling again some time in June.
Your continued thoughts and prayers bring me great strength. I am very grateful for my loving family and caring friends who continue to keep me positive and moving forward.
Yours in Christ,
John L.
Cancer Journey 
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